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I experienced sometimes intermittent and often very severe muscle and joint pain after 3 or 4 months on Orgovyx. The pain would affect different muscles and joints although my more or less painful hip and the front of my thigh were most often affected. The oncologist who was supervising my ADT claimed all this had nothing to do with the drug. A local doc prescribed various exercises. After a while the pains subsided somewhat. I attributed this to the exercise.
When I started a more intense resistance training program at the local YMCA, three times a week for 1 1/2 to 2 hours, all the pains disappeared.
I think the pains were due to the drug. The fact they could be so severe yet moved to different sites and completely disappeared seemed relevant. Exercise oncologists also tend to agree that ADT side effects can be countered with regular resistance exercise.
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I had 24 hours/day constant burning painful muscles and joints for 10 months following four months of Lupron. I also had severe headaches where it even hurt to touch my head. I exercise 4 times a week at a high level for my 83 years. After 11 months of unmeasurable PCA and single digit testosterone I began to recover. No question that it was caused by Lupron. Next month I will see what my PSA and testosterone levels are after 12 months since all treatments have stopped. Doctors do not want to tell you that you may experience this level of pain in order to get maybe a 15% increase in life expectancy because you might refuse treatment. I believe the Lupron would have killed me if I went beyond 4 months.
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@climateguy yes they were from the orgovyx. exercise helps but the lack of testostrone causes all kinds of body aches, sleep problems, fatigue hot flashes...but on each person the combo of side effects hit a bit different..but make no mistkae, they are queued up and ready to take their turn, once you start the ADT regimen