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Profile picture for laneywj @laneywj

@2me, I’m sorry we’re on the same path, not a path we’d sign up for if given the chance. I do love that this forum connects us to others who are also navigating this journey. It’s nice to be able to read posts and in honesty to know you’re not alone.
My husband is to start on the IV infusions at the end of the month. I feel lucky that his neurologist has been pretty proactive with his care, things moving quickly since his diagnosis. Trying to change my mindset back to being my positive self, limiting myself from the 0-60 thinking..one day at a time.

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Replies to "@2me, I’m sorry we’re on the same path, not a path we’d sign up for if..."

@laneywj -exactly, THIS! So many families are on this path…not what any of us expected, and no manual. I am ever-so-grateful for you and others, and to Mayo Clinic for this group! I’m feeling confident in our Neurology office and trying to take one day at a time. As with you, I’m typically a “glass half-full” kind of person. Please keep posting on here, and feel free to send a message, should you wish to! Best to you!