I always had the same problem with needing to elevate. I don’t have to do it much anymore, mostly at night and if medical marijuana- especially cbd which won’t get you high is an option I would try it. Everyone is different, but I can take it and literally watch my leg turn from purple to normal within a matter of minutes. If you can find ways to get improvements (for me the turning point was neridronate infusions) you can start internalizing the message to your brain that it’s improving. I also found massaging it myself helped to reduce the sensitivity and try to think positive and even say it out loud even if it’s just to yourself- I know it sounds crazy, but it’s our brain controlling it and they say that helps to believe it more. I know how hard it is to push past the pain, but there’s hope! I’m 98% better and my doctor was no help either- honestly learned more from these blogs

I'm sorry you are going through this. My daughter was diagnosed with CRPS in October 2019, she is 10. I've been corresponding with parents for several months on a Facebook Support page for parents and collected helpful information. It is very slow & painful progress as it is like learning to walk again, but here is what I've found is the best treatment in my opinion. Remember you are building a new pathway to the brain in telling your brain that there is no longer an injury and you will use that foot / leg. As painful as it is you must move/ use your foot to build that pathway otherwise it will spread as the glia cells will look for new receptors. Use your foot!! The most successful treatment is too keep moving your foot. Frequent physical therapy and occupational therapy, desensitization to the effected area. Meaning, touch with a feather, then cotton swab, eventually tissue, towel, baby brush, etc. Daily for 3 minutes, every 2-3 hours. Soak your feet in warm water. Move your foot in a tub of rice or dry beans. Sit on a yoga ball and put feet flat on padded surface or pile of blankets. Move back and forth. Swimming in heated pool. Don't give up! Small progress is better than none. We went from crutches, one crutch, to no crutches, walking on tip toe. It was hard and It still hurts her like crazy but she's are working on it. The programs that are recommended for her are pediatric intensive pain rehab programs either outpatient or inpatient/ 4-6 weeks, 9-5p where patients learn to mentally cope and move through pain, making that new pathway. Patients can go in remission!! There are programs for adults too. I would do as much as you can yourself, put yourself on a schedule to be as proactive as possible while getting more information and how to move forward.