Connect
← Return to CRPS - anyone suffering with complex regional pain syndrome
Discussion
CRPS - anyone suffering with complex regional pain syndrome
Chronic Pain | Last Active: May 9 2:33pm | Replies (387)Comment receiving replies
Hello I’m Cindy’s and I was recently diagnosed with CRPS after an accident I had at work in 2019 to my left foot and the pain is absolutely intolerable. I’m seeing a pain management doctor which has me on gabapentin she also just prescribed terazosin and a cream to apply when I’m able to touch my foot. I had a nerve block done in January 2020 and I had a severe reaction to the steroid and ended up in the hospital so needless to say the nerve block didn’t work. My employer, friends and family do not understand the unbearable pain I’m constantly in. I was wondering if anyone has any advise or suggestions on how to deal with the pain or anything that has worked for them. I have an appointment to go to the Cleveland Clinic on Monday for more treatment. All suggestions and advice is very much appreciated. Thanks
Replies to "Hello I’m Cindy’s and I was recently diagnosed with CRPS after an accident I had at..."
I'm sorry you have this awful condition. My CRPS started after bunion surgery. I have tried numerous meds. and steroid pain injections. Most gave very short term relief and all caused weight gain. 10 years later I am taking Oxy, cymbalta for pain and depression, Zolpidem for sleep and lidocaine 5% patches daily to dull pain. Recently combined accpuncture and massage with Oxy. Went from 4 to 1 pill per day! After numerous attempts to omit steroid weight I became pre diabetic. Now on Ozempic and am happy to report it has helped me lose 35lbs. breaking my insulin resistance. I hope some of this helps you. I continue to search for relief. Fortunately, a few things are making the condition bearable. If you have any ideas, please share . Hugs
Cindy - I had the same thing happen to me with the steroids! I had a nerve ablation done and came home and had to call 911 that day. Felt ok for a couple of days but then the Pain and Spine doctor gave me steroids and felt like I was having to go to the ER everyday until I finally did and the ER doctor said that the steroids make everything 10x worse - Like you have had 5 cups of coffee. I am also on Gabapentin and diagnosed with CSS - I am going to a 3 week program at Mayo to try and help with this. I will let you know how it goes. Prayers and Hugs
I also have CRPS that I've had in my right foot for about 6 years now. I have an Abbott DRG implant, along with a NALU stimulator in my leg. Sometimes, nothing seems to work. My doctor recently scheduled me for a Lumbar sympathetic block to see if that might give me relief. I think we are trying to keep from going to a stronger med than the gabapentin and tramadol that I am currently taking (and I think I've developed a tolerance for it). Anyway, I was wondering if the steroid you are referring to is the same as the sympathetic block I am to get? I am hopeful the same thing does not happen to me. BTW, I am enrolled in the 3 weeks Mayo Comprehensive Pain Rehabilitation Center soon......and hoping it works!
Connect
I don’t have CRPS but I have a lot of crazy chronic pain that can be anywhere on my body it seems . I am very skeptical of products that are not seen as mainstream FDA -approved treatments . But in desperation , my son bought me this CBD cream from Whole Foods - the name is ShiKai CBD BODY LOTION . I was amazed at the pain relief I got in my neck and otter joints or extremities . It is not cheap , but it is worthwhile . My husband has started to use it also for his hip and now he is a believer now .
I do hope you find something to relieve your pain/ I know how desperate you can feel at times . God bless you !