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CRPS - anyone suffering with complex regional pain syndrome

Chronic Pain | Last Active: Apr 27 4:59am | Replies (349)
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@drp985

Anyone have full body RSD. I know there are not that many with full body and that there are no Doctors that understand what that means.
I’m looking at a stem cell therapy. Like to do it a Mayo but can’t contact anyone. So I guess it’s going to be Vanderbilt.

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Replies to "Anyone have full body RSD. I know there are not that many with full body and..."
Lisa Lucier | @lisalucier | Feb 11, 2020

Hi, @drp985 - yes, it is definitely good to see a doctor who truly understands what you are facing. Hope you may be able to contact one of the Mayo Clinic campuses about an appointment at the link ethanmcconkey provided.

How is this pain you are having impacting your daily life?

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Faithwalker007 (Renee) | @faithwalker007 | Oct 24, 2020

I have progressive CRPS Type II and it has gone from my ankle to both legs, back, shoulder, and hands. I’m avoiding saying full body because I want to blame that on osteoarthritis and ibd. Lol

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