← Return to Appendiceal (NET) - Recommendation for a right hemicolectomy

Discussion
uernameanonymous11 avatar

Appendiceal (NET) - Recommendation for a right hemicolectomy

Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (6)
Comment receiving replies
Profile picture for uernameanonymous11 @uernameanonymous11

@sophiarose Hello!
Thank you very much for your reply.

I have an appointment with a second NET specialist later this week. So far, however, none of the doctors have clearly outlined a surveillance plan as an alternative to surgery.

I hope this consultation will provide more information and help me make a more informed decision.

Jump to this post

Replies to "@sophiarose Hello! Thank you very much for your reply. I have an appointment with a second..."
sophiarose | @sophiarose | 3 days ago

@uernameanonymous11
Good morning
I am glad you replied the other important thing I should have told you is to educate yourself
Find every piece of information you can and ask every question you can think of and write everything down because trust me their is so much you will forget
This site has a great group of people so willing to help you
Come join on the first Thursday of every month they have a virtual where speakers come and questions are answered
Also there is the NCF NETS conference on Saturday 6/20 and Northwoods on 6/21
You will have tons of questions after your appointment hopefully these 3 group virtual will help you get answers or atleast some peace of mind
Go to your meeting notebook and pen in hand
Good luck
I wish you the best

VIEW AND REPLY
Turkey, Volunteer Mentor | @tomrennie | 2 days ago

@uernameanonymous11 I agree with @sophiarose with self education on the disease, but it appears you're already studying. I commend you for that and the second opinion this week. Please let us know how that goes? I am curious to see what treatment options are presented to you. Thank you.

VIEW AND REPLY