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CRPS - anyone suffering with complex regional pain syndrome
Chronic Pain | Last Active: Oct 25 3:58am | Replies (366)Comment receiving replies
@dmac5 I have severe peripheral neuropathy with burning, stabbing, throbbing, contortions, in both feet. I did do Scrambler therapy here in Illinois. I did two rounds of it. First time, I did 10 treatments. Pain went down from an 8 or 9 or 10, to a 5. This lasted about three weeks, and then I did Scrambler Therapy again, 10 more treatments. This time, it did very little. However, I did meet two patients with CRPS who were seriously helped by the Scrambler Therapy. One patient had extreme help in one foot, and not in the other. I think everyone is different, but I do think CRPS patients tend to do well with Scrambler. Best of luck. Lori Renee
Replies to "@dmac5 I have severe peripheral neuropathy with burning, stabbing, throbbing, contortions, in both feet. I did..."
I have had CRPS for over 5 yrs. I have tried pretty much what all of us had tried before- epidermals, lumbar blocks, etc. My disease causes my Right Big toe to feel like an over inflated balloon that’s ready to pop. I tried a Medtronic Spinal Neurostimulator but had it removed after a year as no relief and ineffective. So I had it removed. After trying traditional and alternative medicine, I found Myofascial Release Therapy, or MFR. It has had a profound and positive in my quality of life and has given me hope of living with SOME pain, but not the debilitating pain before. I still need to take pain medications, but my quality of life has been improved beyond expectations.
In fact, I am currently being treated at the Sedona facility Therapy in the Rocks for intensive therapy. In 4 days, therapy has eliminated terrible pain in my feet when I wake up in the morning and foot pain as I’m going to bed, among other positive results that I will discuss at a later date. It’s not cheap but if you’ve tried everything, and you think there’s no hope. Think again. Even if you look in your area for a specially trained MFR therapist, it could make a huge change in your life. Might take several sessions but it’s worth it.
Good luck in finding relief.
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Thank you. I'm very sorry for your pain.
Scrambler Therapy (ST) is one of the treatments I am looking at for our daughter with Chronic Regiona Pain Syndrome (CRPS) It was formerly (RSD) .
There is a physician in Bonita Springs, FL - Dr. D'Amato who does Scrambler Therapy (ST) He is well respected in the field and I believe he has actually trained some physicians at Mayo. I think Mayo is starting to offer ST but I'm 100% sure. You are right, I'm finding treatment outcomes can vary widely with patients. There is not a one size fits all with neurological issues and many times a combination of therapies.