← Return to CRPS - anyone suffering with complex regional pain syndrome

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@jemlen

Hi, I am trying to get some help/advice for my dad. He broke his ankle in two places 7 years ago now. Long story short since then he has been diagnosed with planta faciatius which then years later they said it was actually CRPS. In these years he has had a second operation to try and fix it, cortisone injections, acupuncture, physio, hydrotherapy and evening had some screws removed. Nothing has helped and has only made the pain worse. He has been on so much medication over the years but at the moment his main pain relief is oramorph and codeine. Today he had an appointment with a new surgeon, she said basically amputation is the only option. My dad is fully against this and really doesn’t want to go down that road but is co tangly crippled in pain, completely house bound and depressed. He has put on 5 stone since it happened due to not beong able to move about. He also has specialist inner soles to help as his gait went on his hips. Just hoping someone may know of any medication that may help or an alternative to amputation. He asked about fusing his ankle and they have said it’s pointless 🙁

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Replies to "Hi, I am trying to get some help/advice for my dad. He broke his ankle in..."

I'm sorry for this negative comment, but...Have you heard of phantom pain? Even though a part was removed, you can still have just as much pain because your brain doesn't know the part is missing. I went to a hypnotist to get some pain relief because I don't want to be spaced out on drugs. As far as I know there is no downside to hypnosis.

Don't amputate. Surprised how many do not know how to treat this Chronic Pain Disease. Look up Spero Clinic in Fayetteville, Arkansas. Also Scrambler Therapy - Mayo Rochester and Dr. D'Amato in Bonita Springs, FL. Go on YouTube and watch lecture by
Dr. Chopra. Informative. Also articles on links with gut health & MTHFR with CRPS. Sounds like he has been treated mainly for symptoms and whole body, reason behind the CRPS. There's hope.