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CRPS - anyone suffering with complex regional pain syndrome
Chronic Pain | Last Active: Mar 6 9:27am | Replies (347)Comment receiving replies
I broke my ankle in April 2017. It healed quickly but pt wasn't working foot was worse then b4. I lucked out my orthopedic doctor knew another dr. That dealt with complex regional pain syndrome. I tried gabapentin, it didn't work. Got a nerve blocker, and that worked. Unfortunately it spread to my arm and I had 2 nerve blockers. They didn't work. I ended up getting a spinal stimulator, and it was like magic, I woke up to a normal arm and hand. Unfortunately it spread to my other arm. But my doctor put in two leads because of the fast spreading, and we were able to turn it on that arm is good. But again it's spread to a part of my spine that cant b reached by adding g more leads. I'm looking for alternative sources. I'd love 2 talk to anyone who has this very disabling disorder!!!
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I've gotten books on the disorder I ordered it from barnes and noble, it's called" Positve options for complex regional pain syndrome " by:ElenaJurjis. It's excellent! It gives a lot of medication options, acupuncture several different kinds and treatments. I'm basically trying anything. I already have a upper stimulator, but if it goes into my legs I have no problem going through the surgery again. I was afraid, and my pain is all day. The book talks about therapists who only deal with pain management and know what c.r.p.s.is when you find someone. I had like 5 doctors I go to even after the surgery tried to give me oxycodone for the pain.....they don't get no matter what my brain will continue 2 send these pain out...its not an injury that will ever heal. They say " cbc" lotion on the pain spot might help. Last thing don't give up...it might take a while, but u need to dr. That knows what it is..and a lot of trial and error. Feel free to write back ...I'm always online looking 4 new things that might help.