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pfox (@pfox)

CRPS - anyone suffering with complex regional pain syndrome

Chronic Pain | Last Active: May 30 12:03pm | Replies (194)

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@samgray1217

I do. My name is Samantha. I have Reflex Neurovascular Dystrophy – its simaler, and right now I am being managed through gabapentin to help with overactive nerve issues. Mainly it was caused by an accident. So far, there is nothing for me to do – and there is no treatment for me because I have a massive concussion two years ago, and I was diagnosed nearly 6 months later.

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Replies to "I do. My name is Samantha. I have Reflex Neurovascular Dystrophy - its simaler, and right..."

I broke my ankle in April 2017. It healed quickly but pt wasn't working foot was worse then b4. I lucked out my orthopedic doctor knew another dr. That dealt with complex regional pain syndrome. I tried gabapentin, it didn't work. Got a nerve blocker, and that worked. Unfortunately it spread to my arm and I had 2 nerve blockers. They didn't work. I ended up getting a spinal stimulator, and it was like magic, I woke up to a normal arm and hand. Unfortunately it spread to my other arm. But my doctor put in two leads because of the fast spreading, and we were able to turn it on that arm is good. But again it's spread to a part of my spine that cant b reached by adding g more leads. I'm looking for alternative sources. I'd love 2 talk to anyone who has this very disabling disorder!!!

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