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DiscussionCIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
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@becsbuddy
@itsmeagain
Yes, I’ve been getting Iv treatments for 4 years twice a month. Helped me in learning to walk again but dr and I agreed I’ve plateaued about 8 months ago and now I’m not walking as well. Why? Who knows? I’m disappointed. Now we’ve switched to every 5 weeks instead of 4 to see how that works.
I get discouraged because I hear so many people who are now walking and have pretty much regained their former life and I’m nowhere near that . I’m still in a wheelchair.
I have no after effects from the treatment but I feel I’m going nowhere.
Sorry, that’s probably not what you wanted to hear.