← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@orbit Welcome to Mayo Clinic Connect! Glad you’re here! MCC is a place where people can ask questions, give answers and give lots of moral support to others when they need it. But we don’t diagnose or treat anyone or even suggest they try a medication.
Do you have an autoimmune condition that you would like members here to help you with?

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Replies to "@orbit Welcome to Mayo Clinic Connect! Glad you’re here! MCC is a place where people can..."

@becsbuddy
@itsmeagain
Yes, I’ve been getting Iv treatments for 4 years twice a month. Helped me in learning to walk again but dr and I agreed I’ve plateaued about 8 months ago and now I’m not walking as well. Why? Who knows? I’m disappointed. Now we’ve switched to every 5 weeks instead of 4 to see how that works.
I get discouraged because I hear so many people who are now walking and have pretty much regained their former life and I’m nowhere near that . I’m still in a wheelchair.
I have no after effects from the treatment but I feel I’m going nowhere.
Sorry, that’s probably not what you wanted to hear.