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Congenital Myotonia / Medication related fatigue/ Condition related sl
Neuropathy | Last Active: Jun 16 7:38am | Replies (3)Comment receiving replies
His specialist is unfortunately a neurologist that doesn’t know anything much about his condition. I am currently trying to source a more experienced Dr in the condition. Thanks for your reply
Replies to "His specialist is unfortunately a neurologist that doesn’t know anything much about his condition. I am..."
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@mummakristy the Muscular Dystrophy Australia (MDA) website has a list of support groups that might be helpful locating a doctor more experienced with the condition - https://mda.org.au/neuromuscular-support-groups