I have it as a result of a fall from a seizure that broke my sacrum, hip, pelvis ankle and leg, severed my sciatic nerve, busted my head open and was unconscious in the hospital for four days. I was released from ICU despite my screaming in pain and it went undiagnosed for 3 months. I lost the use of my left lower leg as the nerves never regenerated and ligaments were damaged beyond repair. I went through several 12-week in-patient hospitalizations for brain/spine injuries where PT was the focus. My prognosis was “Pain, PT, and Prayer”. I was already disabled by a neurodegenative disease with unbearable pain and I had No Idea how much worse it could get. My CRPS spread and strong opiates was my only option as I cannot pursue any of the surgical options. The opioids aren’t a solution either; merely a bandage with harsh consequences. Being mentally strong is hard but necessary as living with RSD is beyond challenging. It has destroyed my bone density and physical therapy results in breaks with any pressure. I was already in a wheelchair when I had the seizure that lead to CRPS Type II. Seek out a neurosurgeon and a pain management specialist for this specific reason. I found my existing team was limited and couldn’t see past my other health issues to treat the #1 Chronic Pain disease on the pain scale. I relied heavily on my therapists to help me see the forest through the trees. There’s a website called RSDHope.com and I am meeting with another specialist in this field in a few weeks. It’s been five years for me come this October. I have met many people that have been able to manage this!! I hope we can all find a path of understanding and relief from something that is very much misunderstood.