← Return to CRPS - anyone suffering with complex regional pain syndrome

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@pfox

Thank you Gail - my daughter goes twice a week for PT and sounds just like what she has done to her - it helps but the CRPS keeps hitting her body so relief is temporary. I'll ask her if it referred to as ART. she now has Esophageal Spasms leading into stomach and now taking special blood pressure meds which can help slow or stop the spasms....it appears the CRPS is attacking many parts of her body... but she is a fighter... praying somewhere out there is a pill to slow or reverse this ugly disease.

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Replies to "Thank you Gail - my daughter goes twice a week for PT and sounds just like..."

I'm so sorry to hear this is happening with your daughter. I believe that is happening with as well. I have had Esophageal Spasms lately and have pain all over my body. I have been going to PT and feel good the day of and then next day and days following, I feel like the pain is too much. I am just beginning this journey but have been diagnosed with Central Sensitisation Syndrome. There is a 3 week program at Mayo that I am going to try. It is hard to feel hopeful as I am 58 and have bulging discs and IBS and have handled all of that for years but now it is too much. Prayers for you and your daughter. My 28 year old currently has long covid and a multiple list of issues for the last one year and 7 months and it is all just too much