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Done with radiation!!

Prostate Cancer | Last Active: Jun 22 2:35pm | Replies (27)

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@pamperme orgovyx is also having a big impact on me. What I have found is keeping very busy and active is key to the mental aspect as well as the physical aspect of taking the drug. The hot flashes are still killing me, but I have found. I am able to sleep much better taking some Gummies at night. Now I sleep through the night at least until my shoulders and hip start hurting. Orgovyx also gives me muscle aches, joint aches, some dizziness, makes me anemic and I’m growing boobs. Even though I’m not gaining any weight I’m still getting a little paunch. As a matter of fact, I’m losing weight but it’s still there. I have about another 20 months to go on orgovyx. I am still experiencing some discomfort from the radiation, mostly in the lower abdomen and with diarrhea I wish you the best and please keep us posted.

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@chipe
Thanks for the response, you have many of the things I have and mention the thing I badly need and when I do get it I am better, which is sleep. I have many hot flashes and use popsicles to help which was mentioned on this forum and I use oxybutin. I have the muscle aches and joint aches but expected that. The abdomen and diarrhea I currently have from radiation. I was doing well on exercise until I got into radiation which stopped me from being able to do 30 minutes of elliptical daily.
Overall the ADT is the hard part with me, not the radiation. I am lucky I have only 6 months of adt and yes my breast are larger. I wish you and everyone else the best. Now I will be working to get my testosterone and mental health back and start watching the PSA numbers. Please let me know how you are doing.
Timmy

@chipe Your concerns and issues you've dealt with sound a lot like what I'm going through at the same time as you. I've had 3 Lupron shots that last 3 months. Each shot resulted in a painful week+ where the shot was given - as well as an elevated heart rate that was obvious on my Oura Ring over that time period. I'm starting Orgovyx next month - replacing the Lupron with a daily pill. Hoping it's not worse that Lupron as far as hot flashes, fatigue, weight gain, etc. I had 28 radiation treatments that ended 4 months ago, and now I've started having the cramping and diarrhea issues. Mild, but man, when you have to go you better find a bathroom quickly. lol All part of the journey, I guess.

Any advice on what to expect from Orgovyx? From what I read, it mirrors Lupron's effects - but once you're done with treatment the symptoms you're experiencing are supposed to be relieved a little more quickly.

Best of luck.