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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6412)

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@johnbishop

Hello @bluesman1, I would like to add my welcome to Connect along with @givinghope and others. I'm happy to see that @givinghope has already shared some things you might find helpful. There is also another discussion where members have shared their journey with neuropathy and what they've found that helps them that you might want to read.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

One of the things that I think has really helped me is learning as much as I can about neuropathy. I've made a few lifestyle changes also that I think have helped - eating healthier, eliminating processed foods and staying away from sugar and alcohol, exercise and the tough one for me - losing weight. The Foundation for Peripheral Neuropathy has some information you might find helpful on maintaining a healthy lifestyle here - https://www.foundationforpn.org/living-well/lifestyle/

What is your biggest challenge with neuropathy?

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Replies to "Hello @bluesman1, I would like to add my welcome to Connect along with @givinghope and others...."

I also live in Newfoundland and have been suffering with small fiber neuropathy for 4 years..the meds I have tried just don't make any difference at all..go on the opioids is the next step I'm told...other than drugs I have had no help in managing this pain. I must admit I was going to go to a pain support group then Covid struck..I am very elderly and I cannot do the virtual thing. Especially for so many hours a day
.I fell in January and broke my ankle in two places
.I had surgery and am using a walking boot now..the neuropathy is making recovery so difficult two pains to deal with and the neuropathy is the worst. Difficult not to get depressed..it seems people don't want to hear about it anymore my house seems like a jail
I am glad I found this group and your wisdom John