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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@bluesman1

hi there I'm living in st John's Newfoundland living with neuropathy for about 5 years in my feet and both hands.24/7 I'm in so my pain just hard to function. I'm in tears most of the time the pain is unbearable,it effects my life in such that I have bad thoughts at times it's. just taken over my life. I used to be a pretty happy person the life of the party but not any more. my neurologist has me on different meds over the years but nothing has helped so far. I've never experienced pain like this before I'm also dealing with 2 types of arthritis also had double hip replacement 6 years agg. I just turned 60 and use to be very active not so much anymore.the pain in my hands it's hard to explain one minute they feel like I put in in the fireplace .other times it's like they are frostbitten.I wear my winter gloves about 23 hrs a day.I had a infusion of ketamine and lives and 3 weeks ago no help waiting to get another 5 hour treatment any day now.my doctor is trying his best buy so far no luck. I'm looking for any help or advice or suggestions .any help would be greatly appreciated. thanks

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Replies to "hi there I'm living in st John's Newfoundland living with neuropathy for about 5 years in..."

Hello @bluesman1, I would like to add my welcome to Connect along with @givinghope and others. I'm happy to see that @givinghope has already shared some things you might find helpful. There is also another discussion where members have shared their journey with neuropathy and what they've found that helps them that you might want to read.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

One of the things that I think has really helped me is learning as much as I can about neuropathy. I've made a few lifestyle changes also that I think have helped - eating healthier, eliminating processed foods and staying away from sugar and alcohol, exercise and the tough one for me - losing weight. The Foundation for Peripheral Neuropathy has some information you might find helpful on maintaining a healthy lifestyle here - https://www.foundationforpn.org/living-well/lifestyle/

What is your biggest challenge with neuropathy?