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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@kelsey1234

Hello, I have just been diagnosed with small fiber neuropathy and still going through testing to determine the cause. My life drastically changed after returning from a run back in November. My foot felt numb and then the next morning I had burning pin in my buttocks and across my shoulder blade area. The burning numbing pain has spread through by entire body. I am on gabapentin 300 mg 3x a day. When I increase to 600 mg the bloating is beyond painful. Learning to deal with not being able to wear most clothing as it causes such pain, especially a bra, socks and underwear. I am lucky for the time that I am working from home, but if called back in, I am not sure what I will do. Sitting in the car for a hour commute just will not be doable let alone sitting at desk. At home I have a standing desk and can frequently change positions and wear a bathrobe. Learning to cope has been an adjustment as I was extremely active - running 3 to 5 miles, biking 10 to 20 miles on week. Now walking is painful on my feet. I find that mornings our better. Any information anyone would like to share would be helpful and appreciated!

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