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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@sunnyflower

Hello dear friend! Boy I am so far behind on the neuropathy emails I don't think I will ever catch up and fear some will go an answer that were directed towards me and so I'm trying hard to find those but not making much progress. I got behind because I was afflicted with some new health problems which are required so much time for treatment here at home doing self care that it's just overwhelming! I still been praying everyone and really cared deeply how everyone is doing. Yes a problem with my eyes is now causing me to have to use warm moist compresses for 40 minutes a day and that's if I do both eyes at a time and for 20 minutes twice daily cannot see anything. So, I do one eye at a time and that amounts to 80 minutes a day and then I have to do eye drops throughout the day and to do them properly you have to put them in, immediately blocked tear duct and hold it for two to three minutes so that's that many minutes more for self care. Appointment at night and wow it's just hard to read anything is my ice continue to sting and burn. It's the typical old age dry eye and meibomian gland dysfunction however, it is also part of my autoimmune disease / my rheumatologist and ophthalmologist.

But enough about me how are you and Linda doing? I hope you guys are doing well. Did you both get the vaccinations? I feel fine now and have visited my family for the first time since before Thanksgiving and believe me it was a huge blessing! Oh how I miss them so! I was so lonely!

Please know I'm thinking about and praying for you guys. Private message me if you need to and I've been thinking about private messaging you about what to do with all these emails and how you told me how you avoid that. I will have to search for that I hope and pray I bookmarked it LOL as you may have read, I do not see the icons at John Bishop told me about near my picture on my profile page nor anywhere on my profile page! The only thing I found was that when you go to Mayo Clinic connect and there's a column going down the left side for groups and accounts and stuff there is the word messages there so when I clicked on that it brought me to all of my private messages. I am grateful! But yeah John Bishop spend a lot of time explaining to me how to find my bookmarked items and there was no bookmark item on my profile page at all anywhere on both my cell phone and laptop. No wonder I've been so frustrated trying to get around on connect.

, take good care and warmest regards, Sunny

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Replies to "Hello dear friend! Boy I am so far behind on the neuropathy emails I don't think..."

Hi Sunny, hope you are doing well. I am also having to do the eye routine due to the recent onset of Sjögren’s; If you wouldn’t mind sharing, can you tell me which eye drops you have found to work best for you? I’ve been trying 4-5 different brands but haven’t yet decided which I like best. Helen