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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 hours ago | Replies (6011)

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@ericd47

Vietnam Vet with multiple 'gifts' that keep on giving. Damaged spine (combat wound) - 10 vertebra fused. Demyelinating peripheral neuropathy (Agent Orange). Neurologist started me on gabapentin at 900mg and progressed to 3200mg. Added IVIG when pain kept reaching 9+ - helped a lot. Decreases pain for three weeks and then it starts creeping up. Studies have indicated an ability to slow down the disease. Added Amitriptyline 25mg for pain and sleep aid. Neurosurgeon conducted Calcaneus / Tendon Transfer to move my center of balance and to move working nerve to replace dead nerve to keep foot from rolling. Lots of physical therapy to work on gait disturbance. After discussion with orthopedic surgeon who did most of spine work, decided to try a neurostimulator. Although I asked if it would help with nerve pain, no one could provide an answer. Helped tremendously with back pain. Appears to decrease nerve pain. Neurologist and I agreed to try to slowly decrease my gabapentin. After several months I am down to 1200mg per day. Decreased amitriptyline also. Pain is manageable and I plan to continue decreasing meds.

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Replies to "Vietnam Vet with multiple 'gifts' that keep on giving. Damaged spine (combat wound) - 10 vertebra..."

ericd47, God bless you and thank-you for serving to help protect our country. I hope the stimulator brings you much relief and that you continue to feel better; it sounds like you have had very good health guidance so far. Hugs and prayers, Helen

@ericd47, I would like to add my welcome along with @helennicola and other members. Thanks for sharing your story with us. You have certainly had a long journey with pain and neuropathy. I'm glad to hear the pain is manageable and you have a plan you are working on. You might also be interested in reading what other members have shared in the following discussion.

- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Do you mind sharing how you found Connect?