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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
@ess77 Hello Elizabeth. My goodness, you've been to hell and back. You (and @jakedduck1) really do deserve a medal for your courage and tenacity.
I can relate to some of your journey because my middle son began to have seizures at the age of ten. Three years later, after many seizures which the doctor called atypical of epilepsy, it was discovered he had a malignant brain tumor. After surgery, he had radiation therapy, and the worst part for him as a young teen, was losing his beautiful long red hair. That was in the Seventies, when long hair was so crucial for teenaged boys. Eventually, we got him a nice red-haired wig, which he promptly lost when diving into the pond in a field where we lived. The local police diving team recovered it! My boy has continued to have seizures to this day, because of scar tissue from the surgery. We've had lots of heartbreak over him.
Replies to "@ess77 Hello Elizabeth. My goodness, you've been to hell and back. You (and @jakedduck1) really do..."
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Hello, @artist01 I'm so sorry for your son's problems through the years. I hope he finds peace and relief and you as well.
Yes, I'm realizing life has been challenging for me. I knew it was but for so many years refused to think too much about 'poor me' as I kept thinking it would get better or I could make it all go away or whatever. I think I believed we were supposed to handle everything that came our way and make it better. HMMMMMMM......I have realized, only recently, everyone doesn't have this kind of extremely challenging life. Everyone had difficulty, challenges, and tough times but my experiences have been fairly constant and severe. But, we do have choices in this life....and choices have consequences. Consequences lead to experiences that lead to choices and so on......
So, yes, life has been and is quite challenging. I've had more than a normal amount of yucky stuff but I've also contributed to some of the yucky stuff through choices. Today, as I've been learning so much with Mayo doctors and staff, my choices may be better for me as they're based on good information and guidance from folks who know and are caring. Great combination....although, today I'm still in a lot of pain, especially my hands/fingers/wrists....probably due to my increased activity on this wonderful Connect!!!!!! I have my laptop in my bedroom where I set up a recliner and comfortable place when I need to stay upstairs, can't safely handle the steps. I have a small fridge and coffee and microwave in another bedroom, so this works well for me. But, I tend to be more active on the laptop, since sitting in a desk chair is tough on the body and limited my desk-top use. Choices.....
Blessings and thanks for your good thoughts. elizabeth