@sunnyflower, @bethunger Helllo, Ladies. We 3 have many things in common, it seems. Sunny, when you mentioned Raynaurd's, I ck'd the mayo site and learned so much about it. What a horrid group of symptoms for you to deal with, and you live north of Setttattle! Not the warmest spot. Yes, I'm in Florida, Jax, north Fl. Atlantic Ocean, St. John's River, World Golf Village, TPC Golf Tournament, St. Augustine -oldest city in country....tropical weather w/touch of South Ga., a little winter, lots of humidity and quite warm summers. I live in air conditioning and require it, usually pretty cool. But, recently, I've been setting temp warmer, not doing as well this winter with any cool temps. My feet stay icey, even in warm weather at times, tough to warm up and wear socks now. When they do warm up, they're red and swollen and uncomfortable. Weird....feet are numb on bottom, toes and top of foot, ankle and my shins are numb. Hands stay icey most of time now also. Certain fingers more than others....lots and lots of pain and aching in both feet and hands. I noticed years ago my fingers actually hurt when I touch ice or pick up anything frozen, etc. Now, I just don't do it. It's extremely painful and causes me to jerk and skin to get pale, not white, and then when warm, just like the feet, they get red and swollen!

Sunny, I'm amazed and not pleased. Don't want nor need this addition to my health issues. POOH! I am keeping my home warmer now, and had some trouble staying warm this winter.....First time for that except when in cold climes.

I attribute all this to getting older. But, it's not. More to it and I will eventually chat w/one of my docs, which one? But, nothing to do at this point I doubt.....ideas? I have sarcoid autoimmune disease, epilepsy since I was 11, on most of the meds Jake discusses, but now after 60 years of nocturnal seizures and all that covers, especially include the societal attitudes 60--50 years agol That was so difficult for this young girl and woman. Beth, it seems you and I have that in common as well. But, after 5 days with eeg hooked up in Mayo hospital seizure floor, I found me seizures now are not epileptic. And, I have very few and very small seizures when I do. Always have been when sleeping. With petit mal during wake and other issues.

Now, I'm having frequent UTI and just over a bad infection w/sepsis. Since, my neuropathy is worse. Didn't realize the timing until I read Beth's message, but it hit me head-on. Haven't felt the same since. More numbness, more pain and discomfort.....

OK. That's it for now. Sunny, I can't lift and shouldn't at all the walker into or out of my car, but it's light enough I can if I must. I love it and pretty much leave it in the car since it's lighter. Your find has made me such a happy, wild and !crazy woman. Love the added fun and comments w/smiles.....needed so at this time.

Wow! Must stop....whole lower body is cramping like crazy.....need to get warmer, 'hop' in bed and snuggle in prenatal position with my kitty and get some sleep. Take some potassium. Melatonin, mj which helps everything be better and gets me good sleep, and enjoy thinking about this day.

You take care of yourself, Sunny, and no more broke bones! Beth, good meeting you a sister in lots of ways......sleep with pillows all around . I have king bed and sleep with 5 pillows on the sides and surrounding my head...in the middle-ish of the bed. No hubby now, son must take care not to get hurt. I've done these things for years and so far haven't been hurt in seizures.

Blessings, my friends. God is good, is in your hearts and covering your body with His love and grace and healing power. elizabeth (beth)

love Seattle! Fish market and aquarium and downtown of course.....had salmon every day when visiting.....chat soon. e.