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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: May 26 10:50am | Replies (6004)
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@ess77

@sunnyflower Hello, Sunny flower. I've missed you. Hope you're better and didn't suffer all this time with the vaccine side effects. My reactions lasted about 18 hours, then when fever broke, so did all the problems and I began to improve. No fun, but I know for sure I have antibodies in this body! A good thing.....

I can't wait to get your response to my post to you several days ago, Lady, when you were discussing the posh, funky new rollater your husband just put together for you. Well, I went nuts reading that and immediately went online and bought one for myself. We live, I think, around the world almost from each other, so won't be 'knocking' into you, but wouldn't matter. We'd just end up in a race or whatever....

I hope you are better and energy is up. We're getting into the lovely time of year for flowers......let me know how you're doing and after you read my message. We really are 'sisters in 'bling'...Blessings your way and you get better and better! elizabeth in Florida

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Replies to "@sunnyflower Hello, Sunny flower. I've missed you. Hope you're better and didn't suffer all this time..."
sunnyflower | @sunnyflower | Mar 13, 2021

Hello Elizabeth! Thanks for reaching out! I have over 500 emails from my Connect groups. I am so far behind I'm not seeing people's messages to me. I'm don't want anyone to think I"m ignoring them!

I haven't been feeling well for a long time now so I have even more limited opportunity to talk to people on Connect. I feel worse since my 2nd dose of Moderna. No fever just malaise.

Over time my neuropathy is so much worse. I have it from head to toe. Burn/sting/numb/pins/needles. Only ice gels help. I sit w/heat at my feet, thighs and hands, and ice on my knees and lower legs. Tucked under my winter weight down comforter. Ug, stuck to my bed most of the time. I have Raynaud's disease so between that and my neuropathy, I am very hot and cold in places, sometimes at the same time!! Burn so hot it feels cold. Or wait, is it the other way around? Oh my!

I have several diseases as well and am very weak. No complaints; just info.

I am a woman of faith and God's ever-presence, comfort, and peace through Christ which transcends all understanding (Philippians 4:7), is what gets me through. Just the right verses at the right time!

Thanks you for reaching out! I enjoyed reading your message about the rollator, etc. I live about 25 minutes north of Seattle. Do you live in Florida? I thought I read that but can't find it or recall. I hope the rollator works well for you.

I also have severe osteoporosis and have broken 3 pelvic bones, a rib, etc. so am really not supposed to life my walker. I can't slide it out of the car but not hoist it up into the back of the car. I can almost always find someone to help.

I hope and pray the very best for you! Warmest wishes, Sunnyflower

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