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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@sunnyflower

Hi there Jake. I have almost 500 emails in my neuropathy group! Yikes, I will never catch up! More poor health and more self care for it takes away a lot of time out of the day! I've had neuropathy for a long time before I took Gabapentin for it. I used to make my own CBD from real CBD oil at the dispensary but it took a long time to make 90 or 93 capsules 4 the month. It didn't seem to be helping. I've used the treatment plan that dr. Alan Frankel from greenbridge Medical in Santa Monica California gave to me. Anyway I couldn't take my pain anymore so acquiesced to use Gabapentin. It really does help the brain perceive pain to be a little more doll and since without it might being was intolerable and I guess really still is a lot of the time, in spite of the many side effects from the medication that I can't stand, I stay on it and even consider increasing when I can't take my pain anymore. I'm at a low dose 300 mg 3 times a day. Some people are over 3,000 mg. I hope you're doing well and I appreciate the list of medications you sent to me that can cause neuropathy or make it worse. I definitely will give them much consideration. Take care of yourself! Sunny flower

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Replies to "Hi there Jake. I have almost 500 emails in my neuropathy group! Yikes, I will never..."

@sunnyflower
I took the maximum dose (3600mg) of Gabapentin, although I took the brand name Neurontin but it didn't help my seizures or Neuropathy. My brother currently takes 3600mg of Neurontin and he gets some relief. If it’s helping you, perhaps you might consider increasing the dose to see if it's more effective unless side effects preclude it.
Take care,
Jake

@sunnyflower Hello, Sunny flower. I've missed you. Hope you're better and didn't suffer all this time with the vaccine side effects. My reactions lasted about 18 hours, then when fever broke, so did all the problems and I began to improve. No fun, but I know for sure I have antibodies in this body! A good thing.....

I can't wait to get your response to my post to you several days ago, Lady, when you were discussing the posh, funky new rollater your husband just put together for you. Well, I went nuts reading that and immediately went online and bought one for myself. We live, I think, around the world almost from each other, so won't be 'knocking' into you, but wouldn't matter. We'd just end up in a race or whatever....

I hope you are better and energy is up. We're getting into the lovely time of year for flowers......let me know how you're doing and after you read my message. We really are 'sisters in 'bling'...Blessings your way and you get better and better! elizabeth in Florida