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← Return to Anyone on Rybrevant (amivantamab-vmjw) for advanced NSC lung cancer?
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Anyone on Rybrevant (amivantamab-vmjw) for advanced NSC lung cancer?
Lung Cancer | Last Active: Jun 23 12:53pm | Replies (15)Comment receiving replies
I’m already on a reduced dose of 40mg and have no quality of life. Tagrisso is working at 40mg daily to keep the cancer in remission but I can’t drive, I am dizzy and nauseous all the time. I’m so tired and have no energy. I’m never hungry. I watched the video. He was on Rybrevant at the end of the video when he showed his skin issues? That was terrible. I don’t know if Rybrevant will be worse than Tagrisso.
Replies to "I’m already on a reduced dose of 40mg and have no quality of life. Tagrisso is..."
@bionicbeckyrocks there is a new form of Rybrevant called Rybrevant Faspro. It is a 10ml once a week dose for 4 weeks then every other week. Side effects are less. I’m getting it at Stanford in California but it is approved for use. I also met with Palliative Care and they put together a plan for me that took away my nausea. I was 2 pints low so blood helped my very low BP. I would encourage you to reach out and ask for more resources to help your symptoms.
Hang in there. There are some good solutions.
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@bionicbeckyrocks I'm so sorry the Tagrisso side effects have been disabling for you, even on the reduced dose. Is cannabis legal where you are? That might help with improving your appetite and reducing nausea. And yes - the skin reaction Dr Camidge had was from amivantimab. That said, everyone is different. I would ask a lot of questions about side effects, how long they persist and how they can be prevented/mitigated before starting it. Would a second opinion be helpful?