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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 4 hours ago | Replies (6019)Comment receiving replies
Thank you for the support and info. this group has a ton of information. Recently I have been getting a Email that the heading reads, Mayo has found a cure for neuropathy! If you open there is a product by ( I’m sorry but don’t recall name ) but it discourages me that they use Mayo’s name to advertise there product. I have tried some advertised products, Nerve Renew, the Revitive machine which by the way seemed to be helping a lot then began to fail. I am in a FB group for neuropathy also, numerous have mentioned a product called Nevestra.. I just want to find a way to bring my life back. This is such a crippling thing. I’m a rancher and enjoy outdoor life, but this has taken away that enjoyment and practically chaired me. I force myself to do what I can, I live alone, so I cook my meals and care for the house and my pets. I take in as much as I can handle of my ranch activities. Just keep praying that God will answer my prayers. Bill5
Replies to "Thank you for the support and info. this group has a ton of information. Recently I..."
@bill5 if you remember the name of the company or product that is unlawfully using the Mayo Clinic name to make a false medical claim, please send it to me by private message or using this form https://connect.mayoclinic.org/contact-a-community-moderator/
Thank you.
Hello from Canada @bill5 First post of yours I have read and we get lots of emails as you did, fake ones, and it is bad enough getting them for many other things, but to take Mayo's name and say they have found a cure is disgusting and I hope someone gets caught for doing so. Just wondering if you do, can or even want help to come into your home to make some meals etc. I am fortunate as between my husband an I we manage but my daughters prod us into getting some home help... we are so used to doing things ourselves but I can see the day in future when we might need some utside help and my adult chlldren work from home and I think I would rather have a "stranger" ... wishing you all the best and hope someone catches that phoney email sender. J.
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@bill5 Welcome to our group, Bill! I'm sure you'll find at least some comfort in responses from those who suffer the same issues as you do. Have you had your neuropathy diagnosis for some time?
I've been fighting neuropathy for a while now, and, like you, looking for answers. I was diagnosed with Giant Cell Arteritis over two years ago and became Diabetic as a result of massive doses of Prednisone at the start of the GCA. The neuropathy soon followed.
Stay tuned, Bill. I'm sure others will reply to your post.
Warm regards,
Laurie