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Tethered cord treatment as an adult? Outcome?

Spine Health | Last Active: Jun 16 8:57am | Replies (15)

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@hbourg
I had my tethered cord released at 49 years old. Over the years some symptoms have become better, especially constipation and some back pain. I also have spinal bifita occulta and my facet joints are overloaded because of the shape of my lower back. I have injections for this. Unfortunately, my left leg (longer) has not really recovered and causes pain at night and I struggle going up stairs. So, it is difficult to know if detethering will be successful and which symptoms may resolve. I hope this helps. I am happy I went for it though as I now have feeling in my pelvis.

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Replies to "@hbourg I had my tethered cord released at 49 years old. Over the years some symptoms..."

@janjack - you may have seen me mention my son was born with a tethered spinal cord (observed then as a sacral dimple) and had surgery at three months. He did get behind on other developmental milestones in the months after, but caught up by age 4 with the help of some school district professionals. He has a scar, but he is now totally fine.

I am happy to see some of your symptoms have gotten better since the surgery.

I'm sorry to hear about the pain you have in your leg as well as difficulty getting upstairs with its longer length. I am offering information on a clinic that addresses leg length discrepancy at Mayo Clinic, in case you want to read about that https://www.mayoclinic.org/departments-centers/limb-lengthening-regeneration-clinic-minnesota/overview/ovc-20472088.

Is leg lengthening (your right leg) something you've looked into?