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Looking for a doctor who treats anti-mag polyneuropathy
Autoimmune Diseases | Last Active: Jun 14 8:33pm | Replies (14)Comment receiving replies
I’ve been diagnosed with anti-mag neuropathy in the last few months. I’ve got an appt in Nov with a dr at emory in Atl.
I hope you don’t mind me asking how your health is (ability to walk, etc) after battling this for over 30 years.
Replies to "I’ve been diagnosed with anti-mag neuropathy in the last few months. I’ve got an appt in..."
@kmb205 The pain, numbness, tingling, etc. are in my feet and ankle area. Progression over the years since 1991 was slow but recently seems like things are getting worse at a faster rate. Pain is constant 24/7. I do not fall down but if I am walking across uneven ground, I am not stable. If walking across a flat level floor, no problems with stability. Even before I came down with anti-mag problems, I did not have a strong gait while walking or running. Now I cannot run at all, and my gait is much worse. I sort of shuffle walk. But at least I am not in a wheelchair, and I do not use a cane or walker.
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@kmb205
Also, has anyone else had issues with lower back pain and neck pain who has anti-mag/IgM MGUS with neuropathy?
I had had minor neuropathy symptoms for at least a couple of years, but just since January it has gotten much worse combined with a couple of ER visits, one for excruciating back pain and the other for excruciating neck pain. A CT for the neck pain led to the discovery of an aneurysm in my sinus cavernous. It’s just hard to believe that all of these things are unrelated as I was relatively healthy up until then.