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DiscussionUpping prednisone dose during a flare
Polymyalgia Rheumatica (PMR) | Last Active: Jun 13 1:37pm | Replies (11)Comment receiving replies
Replies to "1. Make sure that you are actually dealing with a flare of PMR and not the..."
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@petermccarville
I think people like you should be celebrated. Most people do overcome PMR in a year or two and successfully taper off prednisone. I'm more interested in those stories because maybe I can learn more about what works. I spent "decades" on prednisone so I'm well versed on what doesn't work.
It is similar to being magical to me that people are able to taper off prednisone relatively quickly. There was nothing very magical about increasing my prednisone dose for every pain that recurred over and over again. The goal should be to make PMR go away and to get off prednisone as soon as possible. I can't say the waiting for PMR to "burn itself out" ever got me anywhere. On the other hand, I eventually had to stop adjusting my prednisone upwards and I had to wait for my adrenals to recover.
I don't think "seroid sparing medications" should be shunned in favor of more prednisone. Thanks to a biologic, I was finally able to taper off prednisone. Otherwise, I would have never been able to taper off prednisone no matter how slow my taper was. The biologic I take controls PMR without the long-term toxicity of prednisone and enabled me to taper to zero after more than 12 years of prednisone. The nice thing about the biologic -- the biologic doesn't suppress my adrenal function like prednisone did. I had to overcome adrenal insufficiency in addition to PMR and some other things because isolated cases of PMR don't tend to exist very often.
https://rheumatoidarthritis.net/clinical/beyond-steroids-pmr