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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: May 26 10:50am | Replies (6004)

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@straightway22

My name is Jean (straightway22) I have peripheral neuropathy pretty badly. It has moved up from my feet to my hips. I have trouble urinating and going to the bathroom. I have been in Dilantin for 40 years. Does anyone know of a replacement drug fir Dilantin without their awful side effects.

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Replies to "My name is Jean (straightway22) I have peripheral neuropathy pretty badly. It has moved up from..."

@straightway22
I’m curious if you have Epilepsy or some other seizure disorder. I took Dilantin also for quite a while which the doctor say is why I now have neuropathy. I switched to extended release Carbatrol (carbamazepine)
I’m not going to say that it’s any better since all seizure medication have their problems. if you’re looking for a seizure medication without side effects I wouldn’t waste my time. I don’t know of anyone taking seizure medication that doesn’t have some sort of side effects Although they generally seem to improve and some go away after a few months of treatment.
If I was to suggest the safest I would go with
Lamictal (Lamotrigine)
One other thing, although not everybody is susceptible but it’s usually safest to stick with the drug your originally put on meaning if you were put on brand stay on brand if you were put on generic stay on generic I don’t switch back-and-forth. The same holds true for manufacturers always get your medication from the same manufacturer. If I get medication from a different manufacturer I generally have a seizure within two days. changing manufacturers doesn’t phase my brother, although he recently had a seizure, his first one in well over 20 years so who knows why. But I know a great many people that it does affect.
Best of luck to you,
Jake