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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
@artist01
When I was on an Epilepsy forum in England. one girls sister notified us when anything serious happened to her. She had very severe status seizures. Members also had occassional meetings and got aquanted with the members & some family members and they notified us. One man who died of Status seizures asked his son to call me if anything happened to him. We were very close.
His grandson used to call me and would always say “will you tell me about my grandpa” It tore me up but I did my best to tell him what what I knew.
I have mentioned In the Seizure thread that a 17-year-old girl died from S.U.D.E.P. ( Sudden Unexpected Death in Epilepsy) her Mom contacted me. We always seemed to find out.
Perhaps people could give a trusted friend or family member Colleen’s contact info and ask that they contact her. In the English forum I requested a memorial section and I wrote a memorial tribute to my friend.
You said you lived another 40 years (so far) So if I live another 40 years I’ll be 108 years old and I am expecting you at my birthday party. You’re only going to be 125 then. Granted it won’t be the most lively party you’ve ever been to
Take care all,
Jake
Replies to "@artist01 When I was on an Epilepsy forum in England. one girls sister notified us when..."
@jakedduck1 @bustrbrwn22
Leonard, you are a Hoot, you crack me up sometimes. If I attend any party at age 108 it will seem lively to me no matter how dull it may seem to anyone else.😊
Jen, mostly its into the ether with the disappearing ones, unless they are thoughtful enough to do what Leonard suggests (give Colleen's contact info to someone and that person actually follows through. As in the case Leonard mentioned). Best, Hank
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@jakedduck1 Thats such a sad story, Jake. I know what you mean. My son has had several near-death experiences including the time he was medi-vacced out of the north and in a coma for days. It was an awful experience.
Anyway, Funny One, I plan to be at your 108th birthday party in spirit at least! And who knows in 40 years what medical science can do for us?!! Just this month there's been a woman who celebrated her 117th, I think it was. I've
always said I want to live to be 97 and then renegotiate!