@artist01
When I was on an Epilepsy forum in England. one girls sister notified us when anything serious happened to her. She had very severe status seizures. Members also had occassional meetings and got aquanted with the members & some family members and they notified us. One man who died of Status seizures asked his son to call me if anything happened to him. We were very close.
His grandson used to call me and would always say “will you tell me about my grandpa” It tore me up but I did my best to tell him what what I knew.
I have mentioned In the Seizure thread that a 17-year-old girl died from S.U.D.E.P. ( Sudden Unexpected Death in Epilepsy) her Mom contacted me. We always seemed to find out.
Perhaps people could give a trusted friend or family member Colleen’s contact info and ask that they contact her. In the English forum I requested a memorial section and I wrote a memorial tribute to my friend.
You said you lived another 40 years (so far) So if I live another 40 years I’ll be 108 years old and I am expecting you at my birthday party. You’re only going to be 125 then. Granted it won’t be the most lively party you’ve ever been to
Take care all,
Jake