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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@faithwalker007

You are never weak or complaining for voicing a question, a concern, or fear to your medical provider about your health. If ANY medical provider makes you feel that way about YOU or your CARE, @bustrbrwn22 report them immediately to your state medical board, and find another provider as soon as possible.
Your very life may depend on it... not only mental health, but physical health.
I’ve had family members nearly killed from this neglect and blatant dismissive type of care— a brother who ended up at the Mayo with over 200 ulcers throughout his digestive tract and a mother who almost died from error upon error of Prescription orders in the cardiac unit because the doctor was too lazy to study her chart.
I ended up SLEEPING next to her bed and double checking every single medication order prior to being given by the nurse after her double stent placement just so I knew she would get to go home. I ended up stopping a glyburide order (she’s not diabetic), a tamoxifen order (still pissed about that one), and fixing her thyroid dosage that they calculated wrong when switching to their available brand.
YOU are the quarterback of your body. You are the one who determines if the person treating it actually respects it or not. Respecting you is one thing, make sure that the person has taken the time to get to know your case and your complaint enough that they respect THAT MORE.
If you don’t know why they are giving you a medication, ask them! Then follow with that information with a blind question to your pharmacist. That means ask your pharmacist something like: Can you tell me what this medication is for? I was really too nervous today at the doctor’s office to remember anything If the information doesn’t match up, ask the pharmacist and then the doctor. Find out what you are taking and why, the side effects and precautions to watch for.
DO YOUR RESEARCH. Nothing you take for a disease is natural for your body even if it’s “natural.” It’s a foreign body and your body MAY NOT LIKE IT AND REJECT IT in ways you won’t like.
When YOU ARE SATISFIED, THEN take your medicine. The times of the blind leading the blind are over. Patients are active participants in their care now.
I’ve told you this before, @bustrbrwn22 you are the one who matters. It’s YOUR body. You are not an experiment.

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Replies to "You are never weak or complaining for voicing a question, a concern, or fear to your..."

Hello. These are good truths here. Bravo for you looking out for your mother and all who have needed that. Most people are so intimidated by our healthcare providers because in a very real sense, they hold the quality of our lives in their hands.

It is extremely difficult for the lay person to advocate for themselves and to equip themselves with the knowledge they need to do so. Having worked with over 80 providers in my 20+ years in patient care, I really got a good sense that they are just like us in many ways. Yet, I can still be intimated easily.

Patients have rights and Kaiser Permanente encourages them to become familiar with what they are with handouts, mailings and brochures on the wall. I love that. Their customer service will encourage patients to make a complaint when they call with a problem!

I care very deeply about each one of you and wish for you the very best everything.

Many blessings, Sunnyflower