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First off, I am so sorry you are going thought this. It is definitely a kick in the old integrity part of who you are to have an issue so personal that you cannot get answers too.

With my digestive issues there are times the pressure is so great in my bum that I have literally got an ice pack to help relieve the pain. I do not have hemorrhoids or anything else that would create the pressure, but while I was on a feeding tube the pressure so was bad that they changed me from a high fiber to a low fiber formula. That alone was a life changer. I have never done well with any kind of fiber despite dealing with constipation my whole life. When things improved the NP felt that gas was building up and forcing things into that area.
Not saying that is your issue, but I have learned at this point to try anything and expect nothing. I did tell my GI doctor about this and the fact that it made me feel like I was on my period, which is impossible as I had a hysterectomy 35 years ago. 🤦🏽‍♀️

I truly hope you find your answer.
Remember we are all different but choosing to share our adventures can help ourselves and others or at least guide them to a possible answer.
One of the things that has truly helped me is AI, I have a premium account on ChatGPT which someone else in the group suggested and it has helped me ask the hard questions to my care team in a way that I can understand.
My Urologist uses AI right in front of me, which I love. It means he is not afraid of getting updated information that could help me.

Take care and keep checking in with all of us.
Happy Summer!

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Replies to "First off, I am so sorry you are going thought this. It is definitely a kick..."

@kcblevins61
Hi @kcblevins61! Thank you for the response to my post, it is quite interesting and helpful. Dealing with this issue is definitely a kick in the old integrity! 💯 I have tried everything that was suggested to me by my specialist, however nothing has helped so I decided to see another Urogynecologist for a second opinion. She basically said the same thing, Pelvic Floor Therapy… What are they not getting? 🤷🏽‍♀️ that didn’t work for me!! My next step is to get a referral to a GI or Colorectal Specialist. All this past week I dealt with the constipation, I drank one top full of MiraLAX each morning with my coffee. Yesterday the diarrhea started. I go from one extreme to the other! I can never have a normal bowel movement. After the bowel movement I feel like I still need to go. That’s when the incontinence starts. Bowel leaks out overnight and sometimes during the day. I have to wear a pad or sleep in Depends every night. This has definitely put a strain on my sex life. Although I don’t have anyone at this time, but even if I wanted to date I couldn’t because of this issue. It is so embarrassing. 🤦🏽‍♀️ please don’t even speak about the flatulence! It smells so bad that I want to run away from myself…lol… Oh, I’ve also had a hysterectomy about 20 to 25 years ago. I noticed that a few responses mentioned my ovaries, but I have none, they were removed as well. I am 66 years of age, but will be 67 in September. I know there has got to be a cure or something that will help me tolerate this pressure and pain. I don’t want to live the rest of my life dealing with this. I have also tried an ice pack and one of those “donuts” that pregnant women use to relieve their hemorrhoids, or whatever. Nothing helps! At this point I feel like I’ve tried everything, but expect nothing! Thank you again for your suggestion and support! Have a great Sunday!😊