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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 hours ago | Replies (6011)

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@jakedduck1

@bustrbrwn22
DON'T EVER THINK LIKE THAT and that's an order!!!
IF it was Steven Johnson it could have been fatal.
it’s important to try to control the anxiety/depression. it increases seizures in some people.
Your not weak or whiney. I'd be changing doctors if I were you.
Take care,
Jake

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Replies to "@bustrbrwn22 DON'T EVER THINK LIKE THAT and that's an order!!! IF it was Steven Johnson it..."

You are never weak or complaining for voicing a question, a concern, or fear to your medical provider about your health. If ANY medical provider makes you feel that way about YOU or your CARE, @bustrbrwn22 report them immediately to your state medical board, and find another provider as soon as possible.
Your very life may depend on it... not only mental health, but physical health.
I’ve had family members nearly killed from this neglect and blatant dismissive type of care— a brother who ended up at the Mayo with over 200 ulcers throughout his digestive tract and a mother who almost died from error upon error of Prescription orders in the cardiac unit because the doctor was too lazy to study her chart.
I ended up SLEEPING next to her bed and double checking every single medication order prior to being given by the nurse after her double stent placement just so I knew she would get to go home. I ended up stopping a glyburide order (she’s not diabetic), a tamoxifen order (still pissed about that one), and fixing her thyroid dosage that they calculated wrong when switching to their available brand.
YOU are the quarterback of your body. You are the one who determines if the person treating it actually respects it or not. Respecting you is one thing, make sure that the person has taken the time to get to know your case and your complaint enough that they respect THAT MORE.
If you don’t know why they are giving you a medication, ask them! Then follow with that information with a blind question to your pharmacist. That means ask your pharmacist something like: Can you tell me what this medication is for? I was really too nervous today at the doctor’s office to remember anything If the information doesn’t match up, ask the pharmacist and then the doctor. Find out what you are taking and why, the side effects and precautions to watch for.
DO YOUR RESEARCH. Nothing you take for a disease is natural for your body even if it’s “natural.” It’s a foreign body and your body MAY NOT LIKE IT AND REJECT IT in ways you won’t like.
When YOU ARE SATISFIED, THEN take your medicine. The times of the blind leading the blind are over. Patients are active participants in their care now.
I’ve told you this before, @bustrbrwn22 you are the one who matters. It’s YOUR body. You are not an experiment.

@jakedduck1 thanks so much for your caring words! Very appreciated!