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@neciern - hi, and welcome to Mayo Clinic Connect. I've moved your post here, to an existing discussion on the same condition, so you can chat with others:

- How to manage microscopic (lymphocytic) colitis? https://connect.mayoclinic.org/discussion/microscopic-lymphocytic-colitis/

Hoping members here such as @pichulita @barb1954 @cows1806 @donnagail and many others will join in and comment on whether your experience getting diagnosed with lymphocitic colitis, yet no changes in diarrhea on medication, plus now onset of significant abdominal pain, cramping, nighttime symptoms and severe right lower quadrant pain, etc., all seem typical or atypical. They may have thoughts on what else should be done to ensure you have the correct diagnosis.

neciern - what symptom or symptoms are bothering you the most lately?

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Replies to "@neciern - hi, and welcome to Mayo Clinic Connect. I've moved your post here, to an..."

@lisalucier
The acute pain, increased cramping and fatigue are most bothersome right now. Despite massive dietary reductions, these symptoms are worsening over my baseline lymphocytic colitis. The calprotectin of 582 aligns with this. I am most concerned about not repeating the small bowel biopsies (the original tissue taken was somehow lost in transit) because it seems that is a critical diagnostic element here. I have a capsule endoscopy scheduled for July but this diagnostic process has been ongoing since March and I’m wondering if I need to push back on the decision not to repeat the EGD for tissue samples