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@chzuck as @razhuny and @kipster have said, prednisone has to be tapered over a period of months. My husband went through eighteen months of tapering till he could get off it. It’s a protocol that needs to be followed. If you don’t, your PMR will keep coming back with a vengeance!

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Replies to "@chzuck as @razhuny and @kipster have said, prednisone has to be tapered over a period of..."

@rashida Long time since I updated my story. There seems to be varying opinions on how to taper. The Rheumatolgist I just fired had me taper 1/2mg/mo. My current one said drop 1mg, then a week later stop completely. I have been prednisone free since April 2. Now a little more info is needed for the statement above.
I started researching on my own and learned PMR is usually hips and shoulders. I was telling my fired Rheumatoligist that my legs hurt so when doing the trim mowing around my house and that when I got completely around, it seemed that my legs were done and could not go anymore. That is when she put me on Methotrexate and when I did not get any improvement, Hydroxychloroquine. I was on that a month or two with no improvement that I told her about my research findings. She had me get off one then the other. My leg pain was coming from issues in my back. I had talked to others about their PMR and they would tell me that when it hit them they could not move because of pain. I never had that. My primary care doctor diagnosed PMR when I went to him with pain in my left should when I would reach above my head. Personally I don't think I had PMR, but an arthritis flareup. I can reach above my head without pain. One really needs to do the research on whatever medical issue you have. Be informed!