Replies to I too have RLS and PILM but not as severe as some people. I started taking...

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Autoimmune Diseases | Last Active: 9 hours ago | Replies (32)

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@degarden_girl

I too have RLS and PILM but not as severe as some people. I started taking high doses of Vitamin D3 which worked great for the RLS and once I found that worked, I slowly reduced the dosage to 2000 MG at night.

The PILM is triggered by Benydryl, Ambien and like medications. For that I am prescribed 100 MGs Gabapentin but I try to avoid the triggers as I feel the Gabapentin makes me unsteady on my feet.

My mother had severe RLS and had to stand or walk around to get relief. I think maybe the Vitamin D3 is keeping the RLS under control. It's pretty benign so I hope you give it a try and see if it at least eases your symptoms. I started with 40,000 mgs and reduced to 20,000.

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Replies to "I too have RLS and PILM but not as severe as some people. I started taking..."

Becky, Volunteer Mentor | @becsbuddy | 9 hours ago

@degarden_girl Actually, Vit.D-3 is not benign. Too much can actually cause problems. Vit D3 works with calcium throughout the body and too much calcium can cause major problems.
From Google:
Upper Limit: The tolerable upper limit for daily supplementation without medical supervision is typically 4,000 IU for most adults.Primary SourcesSunlight: The most natural way to get D3 is through safe, unprotected UVB exposure, though factors like geographic location, skin tone, and sunscreen use can limit production.Food: Naturally occurring sources are limited but include fatty fish (like salmon and mackerel), fish liver oils, and egg yolks.Supplements: Because food and sunlight are often insufficient, D3 supplements (often derived from lanolin or lichen) are widely used.Health Benefits & RisksBone & Muscle Health: Prevents brittle bones and rickets/osteomalacia by promoting the gut's absorption of calcium and phosphorus.Immunity: Vitamin D receptors are found in virtually all tissues, and the vitamin plays a vital role in modulating immune function and reducing inflammation._Risk of too much: Taking excessively high doses (routinely >10,000 IU daily) can lead to vitamin D toxicity, causing a buildup of calcium in your blood (hypercalcemia), which may lead to nausea, weakness, and kidney issues.
Your doctor may have OK’d your high doses of D-3, but I don’t want everyone to think it’s OK without a doctor’s knowledge and agreement

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