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Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "@johnbishop I read that when your pain symptoms decrease or go away as they did in..."
I am learning how this site works, so I don't know if that was a question to everyone or just another person. Irregardless, My pain has become habitual. It shows up in the evening and gives me wake up calls all night. I take most the medicine at night so I don't usually wake for more than a minute but there it is. I've had it since 2007 and the daytime pain is much less. I hope yours takes the disappearing route. I have increasing numbness and I was told it will probably continue like that. Probably is the operative word there isn't it? Well, take care
Hi Jake @jakedduck1 - I can't say whether it's true or not true but my feeling is that it's not true base a little on my own symptoms for my small fiber peripheral neuropathy. I've never had pain as a symptom and have lived with it going on 30 or so years. It started like most people in the toes. Sometimes feeling a little tingly but mostly numb. Then over the years started progressing into the feet. I never bothered to get it diagnosed when I first noticed it because when I asked that doctor how they diagnose nerve damage he told me about the different nerve tests. My next question was so what if they determine it's nerve damage, what can they do to fix it? After he burst my balloon by telling me nothing since I don't have pain then I just said no need to have it tested. Then in 2016 I just had to know because the numbness was just below the knees which is really when I first joined Connect looking for support and answers. I had the nerve conduction tests and an exam by a Mayo neurologist who diagnosed me with idiopathic small fiber PN. He guessed possibly was due to heredity but really didn't know and again told me no answers for treating numbness.
That's when I started looking into healthier eating after reading how Dr. Terry Wahls helped her Multiple Sclerosis symptoms through diet - https://terrywahls.com/. I followed it for a month or so and was feeling better overall but it didn't do much for my neuropathy symptom of numbness so I started looking at other supplements. The rest of my story is in the Member Neuropathy Journey discussion here https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/?pg=1#comment-394729
After a few months of taking the supplements the numbness appears to have rolled back a little to just above my ankles (subjective on my part) but it hasn't gotten any worse so I'm taking it as a win.
Harvard Health has a good layman's explanation of nerve damage that makes it easy for a non medical person like me to understand - https://www.health.harvard.edu/diseases-and-conditions/when-nerves-get-damaged
Happy Friday!