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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
@jakedduck1 @sunnyflower i feel very strongly about lamictal/lamotrigine. While on it I first developed a rash, next time blisters started appearing on my neck and the ER doc wat bed as they spread rapidly down my arms and torso. He showed me a pic on his cell
And said it was flesh eating bacteria nothing he could do pumped me full
Of Benadryl and sent me home 8 hours later. Then the seizures started and my psychiatrist still said to stay on my lamictal. After one seizure I had to crawl like a snake to get around my house and laid on the door jamb to let my dog pea. After a week no exaggeration I could finally recite the alphabet and read some words. It took many weeks to learn to read again. I simply lost knowledge of some letters of the alphabet and couldn’t sound out words. I then started flopping on the floor seizures with still having to crawl like a snake that lasted for days. I stopped
The lamictal and have been seizure free for 3 years as of April 2021. My psychiatrist never agreed with me.
Replies to "@jakedduck1 @sunnyflower i feel very strongly about lamictal/lamotrigine. While on it I first developed a rash,..."
@bustrbrwn22
Good Morning,
I wonder if you had Stevens Johnson Syndrome a rare side effect of Lactimal and other Anti-convulsants.
if by chance you are of Asian dissent it would be a good idea since you had this reaction to be tested before you’re put on any medication that could cause Steven Johnson syndrome which can be life-threatening.
Jake
I so apologize for all my typos on this one guys. Obviously, these seizures, etc. scared the poo out of me and I typed in a state when I had too much emotion.
This sounds like a nightmare! I am so very, very sorry that you had to go through this! This is simply unheard of! Oh my heart is breaking! I am so grateful you are better now and that particular way. Hang in there sister! I am praying that God bathed you in His presence and comfort and that you find His peace through Christ that surpasses all understanding, Philippians 4:7. ❤️🙏 @jakedduck1
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Why would a doctor tell you to stay on lamictal with the rash? Were you taking it to control seizures or neuropathy? Sorry, I’m behind the 8 ball here. Help!