Hi Jake, thanks for the info. The Gabapentin definitely helps me get through my pain aka tolerate it, but doesn't eliminate it. It really messes with my balance and having proprioception doesn't help. I have a lot of the unwanted side effects of it but everytime I try to decrease my dose, my pain intensifies.
When I read what you have been through and go through in life, it confounds my mind bc it's too much for a human to bear alone. It siunds like you walk closely to our precious Lord. That is the only thing that gets me through as you probably have read many times on my post.

Just knowing our almighty God intimately and understanding He has a purpose and plan for my life, is what gets me through. I am in the presence of Holiness at all times and experienced His peace through Christ that surpasses understanding (Philippians 4:7) and His comfort. I know that this present suffering cannot be compared to the glory we will see in His time. Romans 8:18.

In Christ's unfathomable love, Sunny 🙏♥️

@jakedduck1 @sunnyflower i feel very strongly about lamictal/lamotrigine. While on it I first developed a rash, next time blisters started appearing on my neck and the ER doc wat bed as they spread rapidly down my arms and torso. He showed me a pic on his cell
And said it was flesh eating bacteria nothing he could do pumped me full
Of Benadryl and sent me home 8 hours later. Then the seizures started and my psychiatrist still said to stay on my lamictal. After one seizure I had to crawl like a snake to get around my house and laid on the door jamb to let my dog pea. After a week no exaggeration I could finally recite the alphabet and read some words. It took many weeks to learn to read again. I simply lost knowledge of some letters of the alphabet and couldn’t sound out words. I then started flopping on the floor seizures with still having to crawl like a snake that lasted for days. I stopped
The lamictal and have been seizure free for 3 years as of April 2021. My psychiatrist never agreed with me.

Hi there Jake. I have almost 500 emails in my neuropathy group! Yikes, I will never catch up! More poor health and more self care for it takes away a lot of time out of the day! I've had neuropathy for a long time before I took Gabapentin for it. I used to make my own CBD from real CBD oil at the dispensary but it took a long time to make 90 or 93 capsules 4 the month. It didn't seem to be helping. I've used the treatment plan that dr. Alan Frankel from greenbridge Medical in Santa Monica California gave to me. Anyway I couldn't take my pain anymore so acquiesced to use Gabapentin. It really does help the brain perceive pain to be a little more doll and since without it might being was intolerable and I guess really still is a lot of the time, in spite of the many side effects from the medication that I can't stand, I stay on it and even consider increasing when I can't take my pain anymore. I'm at a low dose 300 mg 3 times a day. Some people are over 3,000 mg. I hope you're doing well and I appreciate the list of medications you sent to me that can cause neuropathy or make it worse. I definitely will give them much consideration. Take care of yourself! Sunny flower