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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

@bethunger I think you speak for a lot of us. We would all like to get back to doing some of our former activities. I've found that is not really possible for me so I try to find new activities that I can do and enjoy. I've had idiopathic small fiber peripheral neuropathy for 20+ years that I know of but only recently had the diagnosis in 2016. I also have obstructive sleep apnea which was diagnosed a couple of years ago but I'm pretty sure I've had the symptoms most of my adult life as I have always been a big time snorer. I've read that not all people who snore have obstructive sleep apnea but most people who have sleep apnea snore. I did find some information that might shed some light on your question does sleep apnea have anything to do with neuropathy.

Obstructive sleep apnoea: an underestimated cause of peripheral neuropathy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2117642/

I think it takes about a year of steadily using a CPAP before you really reap the benefits of not being exhausted often. Have you thought about looking into something like the Mayo Clinic Pain Rehabilitation Center to see if it would help with the pain? - https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691

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Replies to "@bethunger I think you speak for a lot of us. We would all like to get..."

Thanks John for the kind response; I do see a pain physician and they are helpful. I think it is just about as good as it gets for now. Finding new interests is the right direction to go. I've mourned my old life for long enough now, so here goes nothing! Thank you additionally for the great referrals, especially about the obstructive sleep and neuropathy.