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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@crisis1152

Hi—new—peripheral neuropathy since 12–idiopathic—Accupincture in 14–ultima neuro 15 to present—Vanderbilt in 17–very candid(as always-wish to “get well”)—highly competitive—drank alcohol—not alcoholic but more than most—told to limit alcohol(which I had already begun to do)—neuropathy was more of “nuisance” at that time—also previous smoker for 40 years—vascular reports good—never low b’s(alcohol normal)—progressed—8/18 prp injections—COMPLETE asymptomatic for 8 months(if alcohol was “cause”-how could that happen-not denying “irritant”)—symptoms returned 4/19 without “known” cause(had hip replacement 3/19)—slowly progressed from “feet only”—up legs and into hands—conflicting reports on “gluten sensitivity”(tested for celiac-am not)—gut repair and supplement support to “fix” but without “cause” for sure—how can you stop progression “for sure”(second round of prp injections-did not work)—any thoughts? Thanks for reading & responding

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Replies to "Hi—new—peripheral neuropathy since 12–idiopathic—Accupincture in 14–ultima neuro 15 to present—Vanderbilt in 17–very candid(as always-wish to “get..."

Hello @crisis1152, Welcome to Connect. I also have idiopathic small fiber PN. My neurologist thought that it was probably genetic but no one in my immediate family is around for comparison. It can be frustrating but I've found it helps to keep learning as much as you can about your condition and symptoms which is a good thing about Connect. Members share their personal experiences, what's helped, what hasn't helped, etc. and we can learn from each other. There is another discussion you might find helpful by reading what other members have shared.

- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

If I read correctly you've had peripheral neuropathy since 2012. When you were diagnosed did you start any treatments for the associated pain?