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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hank, regarding Benfotiamine, I guess everyone is different; I have tried 3 different times over the past 3 yrs. to take it and each time I felt that it made my symptoms worse, so now I am off it for good. I have read that sometimes the pain is telling you that something is working but since i also take 2 other amino acids I decided i didn’t need it. Who knows? I take 8 different vitamins, minerals and supplements besides my gabapentin and that seems to be working for me. I think it’s often trial and error and research. I know that diet, exercise and less stress are major factors also. P.S. My husband recently had surgery and tried a CBD/THC tincture which he said made his post surgery pain worse so go figure! Helen
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@helennicola Helen, you would think that, since we all have human bodies and quite similar DNA that we would all react more or less the same to different things. How Benfotiamine can make your pain worse, Helen, while Lori @lorirenee1 swears it is doing almost miracles for her neuropathy (and I have heard similar testimonials from others) is perplexing. For Linda, as I said, there is no discernible effect. @mayofeb2020 Yes, thank-you, I have heard about Consumer Lab but have never joined. Maybe I should. @avmcbellar Toni, thanks for your inputs as well. I need to come up with a strategy. @jakedduck1 Leonard, actually, I would say that most of the ones she takes make sense for her and do offer observable benefits. Not all are for neuropathy, many are for other things too. Some boost mitochondria and boost energy, these we both swear by (I take most of those also). Others like vitamin C, A, D3, etc. are just mundane supplements many people take. The main ones she questions (because of no apparent effect) are Benfotiamine, R Lipoic Acid, Omega7, Bioperine (supposed to help absorb other supps), boron, PEA (which she will stop soon). Thanks all, for your feedback! Best, Hank