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Ethambutol

MAC & Bronchiectasis | Last Active: 1 hour ago | Replies (13)

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Profile picture for Sue, Volunteer Mentor @sueinmn

@cpitts Were you having vision issues, or was this a routine visit? My docs made sure I knew exactly the symptoms to watch for, to stop ethambutol immediately if noticed, and I had my eyes screened every 3 months while on the meds (incl 6 Mos every day). I'm still fine over 6 years later. There are other docs who prescribe alternative meds, but an ID doc should determine whether your strain of MAC is sensitive to one of them.
PS, my ophthalmologist was the doc of choice to see MAC patients in out clinic system.
I would ask my doc to explain why they felt you were at extraordinary risk and should not use ethambutol- like seeing changes.

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Replies to "@cpitts Were you having vision issues, or was this a routine visit? My docs made sure..."

@sueinmn
Thank you. I am not having vision problems. I just missed one of the color blindness tests and got alittle scared. However, my ID and Pulmonologist still agree Ethambutol is the best so I will stick with it. Appreciate the advice and help!

@sueinmn Are you saying that for six months you had to have your vision tested everyday? Daily visits to the ophthalmologist? Optical nerve issues?