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Functional Neurological Disorder (FND); Anyone have FND?

Neuropathy | Last Active: Jun 9 3:40pm | Replies (38)

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Profile picture for cheyne @cheyne

@horowitz71
Hi,
I have been researching the effect on the body from PBB, poisoning in Michigan state in the 70's. It is a ferry similar chemical to agent orange PCB. Both can affect the nerves system which can cause the arm movements you are getting.
A snippet I found.
Peer-reviewed medical research, heavily backed by the U.S. Department of Veterans Affairs (VA) Agent Orange consensus studies, confirms that long-term toxicant exposure directly triggers a neurological breakdown called toxic polyneuropathy and central nervous system hyper-excitability. When these nerve pathways are stripped of their protective chemical insulation, it creates a literal "short-circuit" in your electrical system, firing off sudden, random involuntary signals that manifest as abrupt muscle twitches, sudden jerks, or unprovoked arm movements.
Interestingly long covid can also attack the nerves system in the same way. They all seem to attack the nerve coating , meylin sheeth, called demeylination.
I got hit with the Michigan poisoning and am having difficulties with autonomic polyneuropathy which effects every nerve in my body, but mainly it has taken over my digestive system from mouth to bowels. It also effects my limbs although only mildly for the moment with minor arm movements among other things. No where as bad as you are reporting though.
Worth looking into, I think you will get further with the VA on this course. Hope it helps.
Cheers

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Replies to "@horowitz71 Hi, I have been researching the effect on the body from PBB, poisoning in Michigan..."

@cheyne Unfortunately, the VA is sweeping Vietnam vets under the rug. While new enlistees are getting full benefits from the VA, those of us older guys who were drafted are gettting blown off. The government figures that we're going to die soon enough, and even if we do, they'll have to pay our surviving spouses any disability. It's a number game and the doctors who evaluate our claims can be quite abrupt or even cruel. My recent evaluator didn't even want to hear how I was doing or how FND has been affecting my life. As he talked down to me, bragging about his lengthy credentials, he went straight down the list of questions he needed to check off. It was the most demeaning meeting I'd ever been to. My wife and I will soon be moving from high-rent coastal California to slightly less expensive Raleigh-Durham, NC. They have a fair VA hospital there, but many of the physicians who work at the VA are connected to Duke Medical School. I'll need to hire an attorney and appeal my claim denial when I get there. I can barely type as my fingers are jumping off the keyboard. My evaluator didn't even ask me about my career or why I wasn't working. Now I'm getting upset. Today, I'm speaking to a financial advisor at Charles Schwab. I'm nervous enough about that. Then I'll get in touch with a realtor in NC and work out the logistics of moving. With so many stressful things to deal with I'm feeling the effects of FND at its worst. No one these days should expect help from the government. We don't own a TV, but it doesn't take a genius to see how we're all being kept in line. My wife and I have the option of moving back to Brazil, which isn't doing too well, but we can get a cheap place of our own to live; or we may go to Portugal where we're also residents, but the bureaucracy is a nightmare. Renting in NC may be our best bet for now.

I knew exactly what to say to the VA evaluator. I simply wasn't given the opportunity to talk; And he didn't care to listen to me. I wasn't even treated as a human being. That's what's happening all over the world right now. The billionaire class owns everything, and workers can't compete with the rich for diminishing resources. My wife and I are grateful for the lives we've lived and for the fact that we're both old and won't be around for what's on the horizon.