← Return to Living with Neuropathy - Welcome to the group

Discussion

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 days ago | Replies (6004)

Comment receiving replies
@faithwalker007

Every once in a while I revisit my old life. I think of what and where I’d be if I’d never met this thing called CRPS. Would I still be a pharmacy manager? Would we still be in Wyoming? Would I be the caregiver of my husband as I’d always been or would we finally have made it to the Mayo or Johns Hopkins to figure out what was happening to him? Or would we still be exactly where we are today?
I don’t spend much time in the past or the future because I usually begin to slip into a deep melancholy. And in that moment, I’m pulled right back into the present by what I call my Life Verse, Luke 12:34.
This verse has been my Life Verse since my 18th Christmas, the Christmas after I became a Christian.
The passage of Luke 12:22-34 has been our marriage’s mantra, so to speak, for the last 31 years (I married two days before my 20th birthday.)
No matter what happens at any time in this life, or pain we must suffer, God is with us and will provide for us— no matter the need.
The future is the future and He tells me rather specifically not to dwell on it. It’s taken me awhile and I still slip up, but I’ve learned, and now I know why. I do what I’m told! Lol
I’ve also discovered that evidently He doesn’t believe curing my pain is a “need right now. That’s not saying that “I” don’t but it’s still here and I’ve asked for that a lot!
As many of y’all know, I’m one of the few in the world with a rare disease, rare allergies, multiple interactions with disease states and drugs which limit treatment, and live in a very rural area with little access to specialty healthcare. Leave it to me!
But I do know God is providing for every need I have otherwise. What, you may ask?
1. An XL fur-lined, double-belted, leather mobility support harness w/ 6 ft handle for my service dog Bo. Cost w/shipping: $113 (usual pricing avgs $155-$550)
2. A van to travel around town and out-of-town comfortably and eliminate the need of having to “climb” in and out of our other vehicles (Jeep Wrangler and Work Pickup). $4400 cash (Minivans average: used $3500-$20,000)

Other needs have been provided surprisingly and by planning with our budget. Both ways, He fulfills those needs. Many needs that we know about and can plan for (like that $7000 neurology bill) and others we have no idea about until they slap us in the face (like that $2000 radiology bill) and are scrambling to figure out how we can tackle!

Do I want the pain to go away? Of course, but I trust God to take it away when we can no longer bear it together.

I hope this makes sense because I didn’t mean write so much! Lol

Either way, know this, you’re not in this fight alone and whatever you need, He will provide. All you have to do is ask.

And that’s ditto for me too. 🐹👩🏻

Jump to this post


Replies to "Every once in a while I revisit my old life. I think of what and where..."

As many of y’all know, I’m one of the few in the world with a rare disease, rare allergies, multiple interactions with disease states and drugs which limit treatment,
I can relate to your statement! I have multiple drug and food allergies, all sorts of neurological problems, and pain. I use a power chair in the house as my feet are so messed up due to prior bad surgeries plus small fiber neuropathy and CRPS. I am recently widowed and have found the alone time to be very precious in growing spiritually. I admitted I was feeling unloved to God and asked Him to fill my heart with His love. It was so spectacular! Every day I get filled. I am learning to live heaven to earth and not earth to heaven and it is improving my life. May God's blessings continue to abound in your life. Thanks for sharing.

@faithwalker007
Renee this is beautiful. I also do know that as long as you remain turned toward him he will always provide for you everything that you need when you need it. It's an incredible thing to see it actually happen. All my best, Hank