@bustrbrwn22
Jen, I hear you. You are suffering like pretty much everyone here is, it's crazy. This neuropathy discussion is like visiting a different planet in some far away star system where people live a completely different existence than what most earthlings can relate to. Most people have NO IDEA of this way of living. Linda just felt a little bit of energy this morning and decided she was going to go out with me to Best Buy and maybe Target. And we did! We went to Best Buy and Linda was almost like her old self. Then we stopped at Target, a mistake in retrospect. By then she had done too much but didn't really realize it or at least did not want to stop being normal. Then we came home. Her legs almost didn't work from the car into the condo. I'd never seen her be so immobile before when we were out, I practically had to carry her. Such is life for the outer space people. This is living in a very different sense, and where very small achievements become astounding accomplishments. I'm still amazed we went out, she and I. It's VERY unusual for us this past almost 2 years.

Jen, just know it's a weird and sometimes awful life you and Linda are now faced with. But don't give up. Do not ever give up. Look at each day as an accomplishment that you got through and give yourself a major gold star. You are incredible and you and Linda and Renee and Lori and Chris and all of you other great people here, are my heroes! Best, Hank