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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 11 hours ago | Replies (6019)Comment receiving replies
@steeldove Kevin tries different settings, establishing when I start feeling the vibration, then when it stops. He does that around 6 times. When he determines that the stimulator is reaching the places where I have pain, he sends the new setting to my controller. Often he sends 2 different settings for me to try. If a setting hurts or makes me feel vibrations, I can turn it down. Sometimes I turn it up to see if it will reduce the pain. But since the beginning of 2019, it has given me no noticeable relief - maybe it will help for a week or two, but then the pain returns.
Does that make any sense? I'm pretty close to giving up on it. I'm going to the pain clinic in Portland in the spring, as soon as the roads are clear, and the threat of the covid19 virus is lower. I'm hoping that they will have something to do to get my pain level down.
Jim
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@jimhd Last month I underwent a 7-day trial with a Medtronic SCS and found that it helped some, particularly in my back and my nighttime foot pain, but didn't offer relief for bilateral miralgia paresthetica and knee pain. I researched more about lateral femoral nerve, and thought that could be the issue. I've messaged my doc at Mayo and asked if it's possible to insert SCS leads at two different locations on my spine, and if so, might he be willing to try to insert one in my very scoliotic lumbar spine. Here's hoping!