Replies to I was diagnosed with PMR in March and put on 25mg prednisone, which eliminated the hip...

← Return to PMR. Endocrine or Rheumatology Issue?

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Polymyalgia Rheumatica (PMR) | Last Active: 6 days ago | Replies (16)

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@kjoed53

I was diagnosed with PMR in March and put on 25mg prednisone, which eliminated the hip girdle pain and tempered the shoulder and neck pain. I tapered down to 22.5mg in April, then I was diagnosed with SMM in May. I'm on a fast taper now and down to 12.5mg. I just started taking 3mg LDN for some relief of the anticipated return of PMR pain. The three nights I have taken it have been some of the best sleep I've had in months.

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Replies to "I was diagnosed with PMR in March and put on 25mg prednisone, which eliminated the hip..."

fearnomore24 | @fearnomore24 | Jun 9 8:21am

@kjoed53 what is LDN?

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gmdb | @gmdb | Jun 10 7:21pm

@kjoed53 that's interesting. Did the SMM diagnosis replace the PMR diagnosis? Is the idea that you no longer need to take Prednisone at all due to misdiagnosis? And is LND now the only medication you need? How did they ultimately decide it was SMM and not PMR?

Sorry for all the questions but the idea of other conditions presenting as PMR comes up often and seems to be one of the most difficult questions in an already difficult area.

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